It has been a while since my last update. It was great having some of the Boxberger clan in town for the OKC Memorial Marathon. Everyone did a great job! Plans are already in the works for next year 🙂After the marathon, hubbie had a conference in Dallas. We thought we would attempt a road trip to see how feasible it is to travel with IV nutrition. It went pretty well but we did learn a few things to make it easier in the future. The pollen counts were lower in Texas and with different types than in Oklahoma. This was really good for me, not only for a change of scenery, but because much of my throat, lip and face swelling went away while we were gone. Most of my face redness and abdominal pain went away. My hair quit falling out as well. It was hopeful to think that in a few weeks perhaps our counts will be that low here.
The kids and I spent most of out time in the room but we did manage to get out two afternoons for one of my favorite activities…. shopping! Brit introduced me to my new favorite store, H&M. As we pulled up to The Container Store, just for a moment, I thought I heard a heavenly choir singing. 🙂 Hubster and the kids got to eat at two of their favorite places: Dairy Queen and In & Out.
Because there is no cure for Mastocytosis, the signs follows us wherever we go. We can never be rid of its complications in our lives but we have a new “normal” now. You just have to do the best you can with what you have right now. You can’t let the memory of the past or the uncertainty of the future hold you back from today’s joy. This trip would have looked differently several years ago and will likely look different in the future. But today we rejoice for what we have. It was refreshing to sleep in, hang out, just spend time together as a family, and take a little break from all the medical stuff. I was pretty tired by the time we got home but overall we had a good trip.
I am so thankful for my extended and immediate family! Great people who I would choose to spend my time with even if they were not related to me 🙂
Children are a gift from the Lord; they are a reward from him. Psalm 127:3 NLT
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