Hi, I’m Christal Boxberger. I am a wife, mother, photographer, and writer. I also have a very rare incurable disease called Mastocytosis. It is in the same classification as cancer yet is an orphan disease. This means it is a condition that affects less than 200,000 in the United States. Living with a rare disease poses many difficulties in being diagnosed and also learning to live day to day life. When I was first diagnosed there was little information on the internet. I wanted to meet others who suffered with this rare condition. More importantly, I wanted to tell my story and share the amazing things God has done. I am currently writing a book about how I was diagnosed and my radical treatment being taken off all food for 50 weeks. The book also tells how I survived, what life was like, and the very real miracles that happened to keep me alive. A portion of each book sale will go fund research to find a cure.
I want to help raise awareness about the disease and hopefully shorten the suffering of others. Today many people struggle with this disorder and don’t realize they have it until a crisis occurs and tips the scales. Many doctors have never heard of this diseases let alone how to test or manage treatment. The occurrence is on the rise. I meet people every week who have been diagnosed. It is a familial disease, meaning if you have it, you children will likely get it as well. Sadly, both of my children have some form of Mastocytosis.
As I began sharing my story with others, I found that many of the truths I learned were universal to all people. There are many kinds of challenges and suffering in the world. You may not have a rare incurable disease but you may identify with the struggle. This blog is about my everyday life and is located below. I want to encourage you through faith, hope, and healing. Welcome!
