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Category Archives: Life with Masto

Mast Cell Beach Experience Day 17 Storms

Storms of Life

Right before we arrived here in Florida the remnants of a big tropical storm pounded the shore leaving behind broken shells and an uneven shoreline. The evidence that something very violent happened here was evident. Over the past few days we have had several big storms blow in including a really bad one overnight. I know it was bad because the sound woke me up. That is not unusual In Oklahoma but here the Florida the condo I’m staying in has big heavy hurricane windows and doors and the building is solid concrete. It can be storming like mad outside with ten feet of visibility but you won’t hear a thing inside. So for this storm to be so bad that it woke all three of us from a dead sleep, it had to be quite a storm. The next day it continued to rain all day and into nightfall.

Today you can say it is the calm after the storm. It was nice to wake to today and see the sun poke its head up after so many days of rainy and stormy weather. The water is a beautiful aqua and so clear I can see through the waves. The shore line has been smoothed. It’s a nice gradual walk into the water, and all the broken bits of shell have been whisked away leaving only soft white sand under the surf.

This reminds me of our lives and the trial we go through. Sometimes the storms in our lives produce brokenness. The evidence can be seen all around us. If the storm continues for an extended period of time or if it is particularly strong or devastating there may be no area of our lives that goes untouched. It may seem overwhelming. As the battle rages on, it appears as though troubles will never end. Then there are times when wake to see the storm has purify or prune us of the unnecessary junk in our lives. What seems painful in the heat of the battle actually helps to remove the obstacles between us and living a healthy, balanced, and purpose filled life. What is left behind is a simplified peace, a new normal.

Genesis tells us we live in a broken fallen world. There will be troubles and trials, there is no if about it. Jesus was the only perfect man and he had more than his share of troubles. If Jesus experienced pain and suffering in this world, why are we surprised when we do? This is not Heaven. Jesus tells us in John 14:30 that this world is ruled by Satan. BUT he does not have the last word. We have a Redeemer who uses everything, if we let Him. The storms of this life will not have the last word. Hold on tight to The Rock and be encouraged by theses words:

There’s more to come: We continue to shout our praise even when we’re hemmed in with troubles, because we know how troubles can develop passionate patience in us, and how that patience in turn forges the tempered steel of virtue, keeping us alert for whatever God will do next. In alert expectancy such as this, we’re never left feeling shortchanged. Quite the contrary—we can’t round up enough containers to hold everything God generously pours into our lives through the Holy Spirit!

Romans 5:3-5The Message (MSG)

Hope and healing,

 

Christal

 

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The information contained on this blog is not intended or implied to be a substitute for professional medical advice. This is my experience and for informational purposes only. Please seek the advice of your physician regarding treatment for any medical condition.

Christal

Great Mast Cell Beach Experiment Day 16

Medication Decrease Day

Mast cell medication

In the last year, I have literally been on more medication than food. The most helpful and more problematic medicine has been prednisone, a steroid. Long term steroid use can be very hard on your body causing a lot of health complication, however sometimes it is unavoidable. People with a mast cell disease and many other chronic or autoimmune diseases, rely on these meds daily. In my case the steroids kept the swelling in my throat, lips, and tongue at a life saving level. Even with medication the swelling never completely went away. Being at the beach has significantly helped with the swelling, it is the best it has been in over a year, although still not completely normal. Today we start to taper down. This is no easy task as my body has quit making its own steroids. We are prayerful the adrenal glands will turn back on. The longer a person is on prednisone the more slowly the taper need so to be to avoid other serious problems. I’ll keep you posted on how it’s going. This day is a big day for our family. Anyone who has been on this drug knows how it is a blessing and a curse. It will be a joyous day when. It is no longer needed.

Philippians 4:19 ESV

And my God will supply every need of yours according to his riches in glory in Christ Jesus.

Hope and healing,

Christal

 

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The information contained on this blog is not intended or implied to be a substitute for professional medical advice. This is my experience and for informational purposes only. Please seek the advice of your physician regarding treatment for any medical condition.

Christal

Great Mast Cell Beach Experiment Day 12

Today the last of my reactions from the  jelly sting were all gone. I feel great! I noticed that my rings were so loose I was afraid I one in particular might fall off. Although I have lost over 75 pounds in the last year, my hands have been so swollen that my rings cut into my fingers leaving deep red divots. Even just a few days ago I had to remove them for fear of having to get them cut off. Now the divots are gone and the rings slide and twist. I need to remove them again but for a very different reason.

The kids flew home yesterday. my daughter Brittany who also has a mast cell disorder called to tell me that before she even got out of the airport she began it stuff up. They went to the grocery store to get a few thing and before she could get home she began to break out in hives. Overnight she got worse and today she has a headache, bad joint pain, and that pesky lymph node in her neck is swollen and painful again. During my weekly call with my doctor’s office I learned that fall flare season is in full swing back home. I’m glad I am recovering here unstead of getting more sick there. I’m not going to lie, I’m nervous about going back. I pray fall flare and cedar seasons are gone by then.

We ran a bunch of errands in the afternoon but made it back in time to watch the sunset. I am just trying to soak in all of God’s beauty. There is a local restaurant we visited last week when my aunt and cousin were in town. They have a unique practice. They celebrate sunset each night by shooting off a cannon. We don’t have a cannon but the thought of stopping what we are doing and celebrating sunset was a pretty fun thing to do. As a photographer I’m envisioning all these pics as massive prints covering my walls. Tonight I am thanking The Father for healing and for the beauty he has created.

Hope and healing,

Christal

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The information contained on this blog is not intended or implied to be a substitute for professional medical advice. It is my personal experience and for informational purposes only. Please seek the advice of your physician regarding treatment for any medical condition.

Christal
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