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This is where the healing begins

Mastocytosis Flare Recovery Month 9 Day 16

Road Trip

After two days on the road, we finally arrived in Florida. I don’t like sitting for so long but really enjoy seeing new and different things along the way. I find America is pretty interesting and it’s people are very diverse. One of the best parts of a road trip for me are all the strange and funny little things you see along the way. This was a Dallas restroom that had an honest to goodness old-fashioned metal prison door on it- yikes! I knew no one would believe me so…

You ask yourself “Did she really take a photo of a bathroom door? ” Yep, that just happened! When I sent this image to my hubbie he said they just didn’t want anyone to steal the TP- lol!

Progress

I have been struggling with this latest round of severe allergic relations since fall 2013. On a recent family vacation to the beach nearly ally my symptoms went away. In May it took about 4 days to really get the full effect of feeling better. You can read about that here if you missed the original post. I have been here about 24 hours and I have started to see some improvement.

  • I am able to go outside without wearing a mask. Other than our beach trip in May it has been months since I could do that. I tried on the road yesterday in both Louisiana and Mississippi and it was no bueño.
  • I have been unable to wear any make up of any kind, including lip balm, for more than nine months. Today, I was able to use a tiny amount of coconut oil. My lips were very happy!
  • Sunscreen has been a huge problem for many years. Today I was able to use some California a Baby Super Sensitive stick without being sick.
  • We were in town just a few hours when the girls mentioned how much better my color was. What do you think?
Healing begins 1
This was in the beginning of May
Healing begins 2This was yesterday
Healing begins 3 This was today
Having only arrived here last night, I think that is a lot of progress. I am excited to see what happens this week and also this fall.

On the agenda

In the days ahead I hope to reintroduce formula, decrease the steroids, and get a little vitamin sea. It will take weeks or possibly months to increase the formula enough to get off the PICC line. Recently, I have been very hungry. Last go round, the hunger returned  just as couple of months before I was able to start trying new foods. I pray that is true this time!

Healing begins

Many of you have told me you love when I post a song or lyrics. In our family we joke about our Soundtrack of Life because it always seems there is a song or verse that fits the situation perfectly. I have been thinking of this chorus all day, it’s Healing Begins by Tenth Avenue North.

This is where the healing begins, oh

This is where the healing starts

When you come to where you’re broken within

The light meets the dark, the light meets the dark

Hope and joy to you,

Christal

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