Great Mast Cell Beach Experiment Day 16

Medication Decrease Day

In the last year, I have literally been on more medication than food. The most helpful and more problematic medicine has been prednisone, a steroid. Long term steroid use can be very hard on your body causing a lot of health complication, however sometimes it is unavoidable. People with a mast cell disease and many other chronic or autoimmune diseases, rely on these meds daily. In my case the steroids kept the swelling in my throat, lips, and tongue at a life saving level. Even with medication the swelling never completely went away. Being at the beach has significantly helped with the swelling, it is the best it has been in over a year, although still not completely normal. Today we start to taper down. This is no easy task as my body has quit making its own steroids. We are prayerful the adrenal glands will turn back on. The longer a person is on prednisone the more slowly the taper need so to be to avoid other serious problems. I’ll keep you posted on how it’s going. This day is a big day for our family. Anyone who has been on this drug knows how it is a blessing and a curse. It will be a joyous day when. It is no longer needed.

Philippians 4:19 ESV

And my God will supply every need of yours according to his riches in glory in Christ Jesus.

Hope and healing,

Christal

The information contained on this blog is not intended or implied to be a substitute for professional medical advice. This is my experience and for informational purposes only. Please seek the advice of your physician regarding treatment for any medical condition.