Mastocytosis Flare Recovery Month 8 Day 13
Should We Stay Or Should We Go?
Since we have been home from our trip it has been a whirlwind to say the least. While on a recent trip to the beach nearly all the symptoms went away. You can read more about that here. Many of you wrote to me saying we should move, others have encouraged us to get a vacation home on the beach to allow me to travel to seasonally. My mast cell specialist was very encouraged about my progress while away and not surprised symptoms returned after a few days. He said my seven-day trip was not long enough. He wants me to go away for a month during the fall flare time. In theory this will not only help heal my current symptoms but also avoid getting worse during the most dangerous time of year. We are working out arrangements to make that happen. Although a month-long trip to the beach may sound great, there are many details to work out. Add to that all the arrangements if you are on a PICC line and receiving home health care.
Hidden Triggers
Since I generally get better when going out-of-town, my doctor wants me to run a little experiment to see if I am reacting to something in my home that we are missing. This week I am staying with my parents. It has been good spending time with them. We will know more by the end of the week how it will turn out. The fact that my swelling started to return 93 miles from the coast tells me that it is likely environmental. However, like everything else with this disease, there are many pieces to the puzzle. We are going to be diligent and run down any possibility he suggests.
Leave it in His Hands
At this time our future us unclear. Our thoughts are filled with confusion and hope. God is bigger! I want to share my new fav song that I have been listening to repeatedly. I’m so grateful for artists that write music that express what is in my heart and soul. I hope this song blesses you today. No matter what you are going through God is bigger.
In your hands by Unspoken
The dawn is breaking and I can hear Your whisper in the breeze
The world is waking and I am here to meet You on my knees
When I’m with You my soul finds rest
Cause I can leave it in Your hands
The day keeps coming pulling me a million different ways
I’m always running but never seem to catch the things I chase
When I’m with You my soul finds rest
Cause I can leave it in Your hands
Every sorrow, I leave it in Your hands
Every sickness, I leave it in Your hands
All my failures, I leave them in Your hands
Amen, I leave it in Your hands
So I am laying the weight of all these burdens at Your feet
No more waiting, cause You’ve already won my victories
In Jesus my soul finds rest
Cause I can leave it in Your hands
Every promise, I leave it in Your hands
Every healing, I leave it in Your hands
And my future, I leave it in Your hands
Amen, I can leave it in Your hands
It’s Your hands that form the mountains
Your hands set boundaries for the seas
And in Your hands You hold tomorrow
The same hands that took the nails for me
Every sorrow, I leave it in Your hands
Every sickness, I leave it in Your hands
All my failures, I leave them in Your hands
Amen, I can leave it in Your hands
Every promise, I leave it in Your hands
Every healing, I leave it in Your hands
And my future, I leave it in Your hands
Amen, I can leave it in Your hands
I can leave it in you hands.
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So glad you felt so good on your trip.
Well, I’d have to agree as far as environmental effecting our disease, I think that bc both Lisa and I have had the same experience when going to Florida or a beach climate. Maybe it has something to do with the ocean. Although my symptoms didn’t disappear, they did reduce dramatically 🙂 I’ll go with you in the fall if you have to go alone Hehe
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Christal Boxberger is my husband Bruces daughter in law.Please pray for her. Please share her story.
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I’ve been thinking about this since your last post. I grew up in Huntington Beach, CA and didn’t start to have serious health problems until we moved to Oklahoma. I’ve not been able to travel for several years, so have no idea if I would feel better in a different climate/environment. I’d like to find out, but am not sure that it would make much of a difference-at least not for now. My husband is a pastor and we believe he is called to this place, which means that I also am called to be here. And, I suppose, it means that I am called to this illness as well. Looking at it this way makes it easier for me to accept each day as it is given. This has been my key to mental and emotional wholeness despite the mast cell craziness: each day that I live is exactly as my Father meant it to be. I hope you can manage that month away in the Fall and am eager to learn if your health improves while at your parents. I’m praying.
I need to play that over and over and over, too.
So glad to hear you had some relief and a vacation. I hope the recent rest will do wonders for you. That song was beautiful and is so true. Will continue to pray the answers reveal themselves. All things through Him…
What a great lesson for us in that song. Good reminder. Prayers to you!
Praying for you today, Christal. Praying for renewed health, and for wisdom to make the right decisions.
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