Today is day two of a lowered dose of steroids. I have significant swelling of the face, lip and throat. Day two is always worse for me until my body gets used to the new dose. Although I do not feel my best, I am thankful to be able to be moving forward. Getting off the steroids all together is the goal, which is something I have not been able to do for 7 1/2 months. There are lots of side effects and other complications that come from being on them long-term. My battle with Mastocytosis is ongoing but there is movement. Today I feel like I am living the lyrics of one of my favorite songs by Mercy Me.
“Move”
I’m not about to give up
Because I heard you say
There’s gonna be brighter days
There’s gonna be brighter days
I won’t stop, I’ll keep my head up
No, I’m not here to stay
There’s gonna be brighter days
There’s gonna be brighter days
I just might bend but I won’t break
As long as I can see your face
[Chorus:]
When life won’t play along
And right keeps going wrong
And I can’t seem to find my way
I know where I am found
So I won’t let it drag me down
Oh, I’ll keep dancing anyway
I’m gonna move (move)
I’m gonna move (move)
I’m gonna move
I’ve got to hold it steady
Keep my head in the game
Everything is about to change
Everything is about to change
This hurt is getting heavy
But I’m not about to cave
Everything’s about to change
There’s gonna be brighter days
I just might bend but won’t break
As long as I can see your face
[Chorus]
No matter what may come
Gotta move to a different drum
No matter what life brings
Gotta move gotta move to a different beat [x2]
I just might bend but won’t break
As long as I can see your face
[Chorus x2]
No matter what may come
Gotta move to a different drum
No matter what life brings
Gotta move gotta move to a different beat